This course is intended and designed to provide a focus on disability as distinct from illness. Disability Studies approaches disability not as an attribute of an individual's body or mind but as a social relation that creates disadvantages for some people and privileges others based on the presence or absence of stigmatized physical and mental differences. Disability studies provides a critical framework to examine the social practices, cultural representations in various media, and public policies through which shared understandings of disability are developed and expressed, reproduced, contested and reimagined. This course draws on various disciplinary perspectives to understand the broad and complex phenomenon of disability in historical perspective, as represented in literature and culture, and especially as it impinges on medical scenarios.
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Our interpersonal experiences and the personal identities we hold both shape and contribute to our individual concepts of health, as well as to our awareness of the beliefs and identities held by others. This course examines how various marginalized groups have historically organized and advocated to bring about change in communities impacted by health disparities and social injustice. How can understanding their stories and the strategies they've implemented to construct, share, and collect their narratives, inform health professionals and their allies in developing new and innovative approaches to hear, interpret, and respond to the needs of the communities they are charged with serving? At a time when a renewed focus is being placed on health equity, social justice, race, bias, resource distribution, and access, it is imperative to look more closely at the experiences of communities and the individuals within them who have been placed at greater vulnerability. With an attentiveness to intersectionality, critical race theory, and media studies, course materials will guide an exploration of narrative and its relationship to activism, advocacy, and messaging around community health.
Whether alone with ourselves, or in close relationships with important people in our lives, dominant narratives shape our encounters by bringing certain aspects of our experience to the fore and marginalizing others. Narrative Therapy is a school of thought developed by Michael White, the Australian psychotherapist and social activist. Influenced by Social Constructionism and the writings of Michel Foucault (among others), White sought to understand the ways in which systems of power and control on the societal level shape our most intimate experiences. There is a price we pay for the hegemony of dominant narratives (as Foucault would say) as other aspects of our experience become marginalized and pushed out of awareness in this process. But by analyzing the dynamics by which certain narratives come to hold sway over us, and by considering what goes missing from our experience, Narrative Therapy seeks to undo this price by re-evaluating the stories we live by so that they can be more expansive and less limiting.
In this course we will look at the basic concepts and theoretical underpinnings of Narrative Therapy, and then begin to understand the essential techniques and areas of application of this important therapeutic school. This course does not train students to practice therapy. Our emphasis instead will be on developing ideas for ways in which the concepts and techniques introduced by Narrative Therapy can inform the practice of Narrative Medicine.
Questions we will address include:
● What can we learn from Narrative Therapy about the ways people structure stories about themselves, and how does this affect their relationship with their bodies, with illness and their conceptions of healing?
● What are the mechanisms by which dominant narratives from the social sphere are integrated into an individual’s self concept, and how does this then influence power relations in the clinical encounter?
● Theorists within Narrative Therapy strive to foster a non-hierarchical, non-expert stance in the clinical encounter. What are the possibilities and the challenges inherent in maintaining this?
This course examines questions such as: What does the telling and reading of narratives do for the ill or disabled individual? How can clinicians effectively elicit, interpret, and act upon such narratives? Who owns a story, and what is the role of co-authorship, power and witnessing in story-telling and story-listening? Whose voice do we hear? What are the roles of power and hierarchy in story-telling and listening? What is the impact of familial, cultural, social, institutional, political contexts on the individual story? And finally, how can personal stories be translated to political advocacy and action? Texts assigned weekly will be broadly interdisciplinary – drawing from memoir, poetry, essays, fiction, feature and documentary films, narrative theory, and disability studies, exploring the relationship between disability/illness experience and narrative. This elective course is open to all students in the Narrative Medicine CPA program. Students should be prepared to engage with each other and with the instructor and to offer their questions, comments, insights, and analysis.
This is an essential, practically applied element of narrative medicine study and it is exemplary as a way to illustrate the impact of narrative study in shaping experience, opening awareness, and highlighting the need for change and new stories. A narrative medicine course focused on disability and illness narratives is an important aspect of narrative medicine study. Exploring narratives presented in a variety of formats by using narrative medicine methods can encourage deeper perspective-taking and promote activism for underrepresented voices.
Disability and Illness Narratives: Storytelling For Awareness and Activism
is an elective course in the Narrative Medicine CPA program. In addition, this course is open to cross-registrants in other programs who demonstrate some understanding of narrative medicine and/or participate in the online asynchronous narrative medicine orientation course before the semester begins. Narrative Medicine CPA students are required to have completed, or be simultaneously enrolled in the course,
Narrative Medicine Methods: Close Reading and Writing
, course number K5120, and have completed the required program online asynchronous orientation course. CPA courses are all 10 weeks/modules long, and they are online and asynchronous, which means there are no meeting times. Each module represents one week of the course. All modules begin on a Tuesday and end on Monday of th
This workshop provides an intense immersion in the methods and skills of narrative medicine. Lectures will open up themes of how stories work, creativity, ethics, bearing witness, and empathy, while the small groups practice rigorous skills in close reading, creative writing, and responding to the writings of others. The learning objectives of the workshops are to 1) provide personal contact to introduce and solidify intersubjective relationships among participants; 2) to ignite use of methods that have been and will be utilized in the on-line component, e.g., writing to prompts from literary texts and responding to both form and content of colleagues’ writing; 3) plenary lectures from the architects of the discipline of Narrative Medicine in the foundational theories to be studied; 4) scheduled cultural learning opportunities of New York City (music, museums, literary readings) for shared creative experiences; 5) contact with Master of Science in Narrative Medicine graduate program for certification participants toward their understanding of the breadth of the field and the potential for their continuing to study NM after the CPA; 6) introduction to the national and international reach of Columbia Narrative Medicine so that participants grasp the value and magnitude of the community they have entered as certification program students. Participants will be given the chance to present their own works-in-progress to assembled participants and faculty as a jump-start to collaborative projects during and after the participation in the certification program.